Please help us support the work of the SMA Trust


Sorry to bother you all with an off-topic post today, but I’m just writing this to let you know about the work of the SMA Trust.

They are the only UK charity solely dedicated to funding medical research into Spinal Muscular Atrophy (SMA), a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function.

Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months.

This weekend my wife is running a 10k race in support of this fantastic charity, and I’m asking for your support. If each of our readers only donated £1 each, it would provide the charity with tens of thousands of pounds, every single one of which would make a HUGE difference.

If you’d like to help, please head over to this Just Giving page. Below you can see what kind of difference your donations can make.

Thank you.

£15 – pays for an average day’s laboratory supplies.

£35 – funds an hour of research that could lead to treatments or a cure for SMA.

£50 – contributes to the rental of specialist equipment.

£100 – contributes to research workshops.

£500 – pays for 1 day of a laboratory research technician.

£1,000 – contributes to the hosting of a research workshop, bringing together SMA experts from all over the world to address a particular issue.

£2,500 – gives an SMA research scientist the opportunity to attend the annual international SMA research conference which takes place in the US. This conference is invaluable for sharing SMA research advances and networking.

£4,000 – funds 1 year of laboratory supplies.

£10,000 – funds two months of pioneering research into the causes of and treatments for SMA.

£30,000 – funds a PhD studentship for one year.

£100,000 – supports a research student through their PhD (3 years), encouraging the brightest young scientists to develop an interest in the field of SMA research.

You can donate via Just Giving

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